Day 92 & 93

JETT

Day 92, 29th December, exactly 3 months old!! - Cuddle day :)

Today Jett had his blood test to test his coagulation factors in his blood. The tests came back good, but it could also be due to the Vit K he had a couple of days ago. His platelets were up, 107 so that's good.

Jett's oxygen requirement is at 29% which is good, although his rate is up a bit at 40. He is tolerating handling and suctions quite well lately, sometimes brady's to let you know he needs suctioning, but he doesn't need all his ventilation pressures increased anymore. His secretions are no longer blood stained and they have thinned out a bit, although he still sounds very rattly.

We had a lovely cuddle for 3hrs, he was asleep on my chest and I slept too. It's the best. His oxygen requirement remained the same, he seems to tolerate being upright better than the cradle hold. I think with the cradle hold he slips down and his lungs get a bit squashed.He needed his tube re taped after his cuddle, he is so strong and the tube loosens very quickly because he pulls his head away from it..

I think thats all that happened today :) Oh, I think I forgot to mention he had his head circumference measured at the beginning of the week and it was about 36 or 36.5cms.

Day 93 - Wash and weigh day

Mummy's little boy wants to be a smelly boy lol, he has hated his bath the last couple of times! They have been very quick! He has been fine getting weighed though, I don't think the nurses even increased his oxygen for the transfer. His weight today was 3590gms, so that's a loss of 235gms. dr D is happy with that though, since she increased his lasix a couple of days ago and also put him on a potassium sparing diuretic spironolactone. Dr D feels that todays weight is his real weight rather than fluid :)

Dr D said she is going to start harassing the surgeons to get the ball rolling for the contrast next week. Scary, but good too.. I guess the hard thing is that the contrast still wont give us a definitive answer as to what's happening inside that little tummy of his!

Jett had to have another tube re tape today. Twice actually. 1st time they did it because he'd had an xray this morning to see if the tube needed repositioning and it did, so they put it further down. That has to be done because he is growing so much, unfortunately because he slobbers so much and moves against the tube it became really loose quite quickly so was done again tonight. He handles tuube re tapes really well, he just lays there. Last night though an unfamiliar nurse had him and restricted his arms and he fought the whole time. The nurses that know him and know he's ok, don't pin him down and he is a lot more relaxed. Plus I am there to hold his arms if need be, but normally he's pretty good.

He has been positioned midline over the last few days and he seems to like it. Sometimes he does, other times he just gags on the tube. If he is ok, I like it because then he can see his mobile properly. Not sure what he can see, but he can definitely see something, when I move it his eyes flick up to watch it. I'm glad he has a little bit of stimulation. He must be so bored now that he's getting older. His sedation was weaned down to 1mcg the other day and tonight it is being cut out completely which means he will be more and more alert. I sing and read him stories, but still, not being picked up or be able to be taken outside must be awful.. I can't wait til I can take him outside. He has to be off breathing support first though, so a long way to go yet!

I think that's it, here some cute pics of Jett with his teddy. I encourage him to hold it otherwise he holds his tube which is not good lol!