Day 100 & 101!!!!!!!!!!!!

100 days!!!

Well today the nurses decorated Jett's cot with balloons that said happy 100 days and made a beautiful card which lots of the nurses and Drs signed :), he also got a blanket and a couple teddy's..

I got a date for Jett's first contrast xray. It will be on Tuesday. I was given dates later in the month but when I saw the surgeon she said that wasn't right, so she had them changed to when they were supposed to be, which is next week. Just to recap in case you have only recently started reading, Jett has to have an xray with contrast to see what's happening with his bowel. He will have to have 3 contrast x rays, the first one they will put dye down his naso gastric tube, then a few days later they will put some dye in his bottom, then a few days later they will put it in his drain, which sits in his small intestine. The x ray will show where the dye goes and hopefully show where the bowel is narrowed. It is possible some of the bowel has died so it should show that. Hopefully from there the surgeons will make a plan soon after to operate. What they want to do is open him up and untangle his bowel and be able to separate the bowel that has adhered to his abdominal wall and liver. Once they do that, we are hoping he will have enough good bowel to allow them to cut out the affected part and join the rest up so he can start having feeding and absorbing nutrients. It will be a huge operation...

They had to do a rectal biopsy on Jett today :( it involved just taking out 3 small pieces of bowel to rule out Hirschsprung's disease, which is a blockage of the large intestine due to improper muscle movement in the bowel. They think it' s unlikely that he has it, but just want to rule it out before he has this big op.. He handled the biopsy well, it is really quick and the sample they take is from a part that has no pain receptors.. Even so he was given panadol and breast milk and Mummy was there holding his hand..

I also managed to get a midstream urine catch, but the results of that aren't back yet.

Jett and I had a lovely 4hr snuggle in the night time :), so so relaxing. No place I'd rather be and a lovely way to spend his 100 day birthday.

Day 101 - Jett's due date!!

Today I walked in the nursery to see my baby sitting up!! It was so cute. The nurse raised the back of his bed up and he was sitting up wide awake watching his mobile. He is so interactive. He loved it :) After that he had a big boy bath. The nurse made the water deep and he just floated in it. He splashed his arm and gave little kicks.. Very cute :)

After his bath the dressing of his central line was taken down because the tape was a bit tight around his arm. Unfortunately his central line had split so it had to be taken out. This means he has to have a new one because that's how he gets his nutrition :(.. It wont be done til Monday though, in the meantime he is just having fluids through an IV. The IV went in really easily, now he's older and his veins have had time to recover.. So next week will be a huge week for my baby, Monday he'll have central line and he also has to have bloods which involves having an arterial stab, then Tuesday it's off to the children's hospital for his x ray!!

I am really scared about the coming weeks, but kind of glad things are starting to move. We have been stagnant for so long. I know things could go either way, I'm just hoping it's the start of Jett's recovery and we can start looking forward to getting him home!!!

Some pics of my baby sitting up :)