Day 104 & 105 - Contrast x rays started!!!

Day 104

It was a busy day today. Dr D came in this morning to do Jett's central line, unfortunately after trying for over and hour she admitted defeat and called on Dr C the director. He planned to do it in the arvo after his contrast, but as it turned out we got back too late, so central line will be done tomorrow. Jett is now in an open care system again because the cot can be moved up and down. He looks so big in it now!

Jett has been started on gentamicin and ampicillin for the e coli in his tube. Dr D thinks that it could be why his oxygen requirement had gone up as it was up to 50%.. She has also ordered an echo to check his duct.. He had pink lung secretions again so more vit K was given and it was decided he will have a vit K shot fortnightly now.. His lasix has been dropped from 4 times a day to 2 :)

Jett's ventilation was increased because of the sedation so his rate is 50, Pip 24, peep 7 and oxygen around 50%.

The contrast

Jett was given 2 bolus doses and a continuous infusion of morph and medaz for the insertion of the central line so he was totally wacked out when he had his contrast. We went over to the children's at 1pm. I went in there with him and they started by putting contrast down his naso gastric tube. They x rayed and waited but it wasn't moving past his stomach. They decided they would wait an hour and a half then x ray again. So we waited in the x ray room til after 3pm then they started again. The contrast still hadn't moved past his tummy so they decided to put the contrast in his drain. The contrast went through up to his stomach, so they don't think there was a blockage, they just think his stomach doesn't work because he has never really been fed. Anyway, we don't get official results til all the contrasts are done. The next contrast will be an enema and will be done once the contrast from the NG tube and drain has gone.. Jett slept the entire time Lol. His first outing and he was fast asleep!!! I am getting impatient now and just want this all to be over. I think surgery will be next week..

Day 105, the 2nd contrast, very unexpected!

Jett was still a bit sedated this morning, even though his infusion was stopped last night. He was given another bolus dose before Dr C finally put in the central line though. The central line went in at about lunch and I spoke to Dr D after that and she told me Jett's next contrast may be this arvo which was really unexpected! Sure enough at about 2.30 I got the call and they said radiology wanted him over ASAP. So at about 3pm we were back at the children's hospital while my lil baby had a catheter in his bum and contrast through it.. The contrast didn't take long, it moved quite quickly so we were out of there in no time. Again, no official results but the contrast went through what looked like most of the large bowel :). Jett was asleep through the procedure, but he woke up on the way back.. He was wide awake looking around. I was pointing out trees out the window lol, he had his eyes squeezed shut because it was so bright! I think he liked his little adventure though :)

Not sure when the next contrast will be, I'm hoping it will happen quickly. The next contrast they will put a catheter in his penis and put contrast in his bladder. This is to check if there's a fistula between his bladder and bowel. My poor baby, it's so invasive :(..

Jett is still in his open care system, I'm hoping now his central line is in he can go back in his big boy cot. I want to be able to sit him up again so he can look around, and that can only be done in his other cot. He wont be able to have big boy baths anymore because his central line is right up the top of his arm, near his arm pit. It will be too hard to keep dry.. I am hoping for a cuddle tomorrow, I haven't had one since Sunday!

Jett's rate is back down to 40, pip, 22, peep 7 and oxygen came down a bit to 46%. Echo didn't get done today.

I think that's it, a very busy couple of days!!!