Day 10 :)

JETT

Pictures were taken yesterday, except the one with sunnies on, that was taken tonight. He's soooo CUTE! My lil baby has had such a good couple of days!! He was doing really well yesterday and is doing even better today :) I'll try to recall all the events!

Last night his bedding was changed and he tolerated it really well. His oxygen was brought up before the handling just in case, but no de sats and he was weaned again overnight.. This morning I got a really good report his Delta P (ventilation wobble) had come down from 20 to 15 and his oxygen had come down from 36 to 28%. :) He started on hydrocortisol yesterday for his blood pressure and is being slowly weaned off the dobutamine and the dopamine..

He is very puffy with fluid which is causing the skin on his neck to break down :( They are using Bactarin to treat it and kaltostat. He is now on lasix to hopefully get rid of the fluid, but it's a balance between that and making sure his electrolytes aren't thrown out too much.. He needed another albumin transfusion which he finished a couple of hours ago. During the day his delta P went back up to 20 after his blood gas showed slightly higher carbon dioxide..

Tonight when I left he had just had a blood gas which was awesome :) His delta P is back down to 19, his oxygen is 21% which is equivalent to ROOM AIR!! :) :) His nitric oxide has been brought down to 10 from 20 and this is great news because weaning off that is the first step off towards coming off high frequency ventilation. It is still one day at a time though and 1 step forward 2 steps back is unfortunately the nature of the game. If he keeps like this though, Mama will get cuddles in no time..

Also today his feeds went up to 2mls and he is tolerating them really well. We are waiting for him now to do his first poo :)

MUMMY

I'm doing well, Mum left yesterday, so that was sad, but because Jett has had such a good couple of days my head space is really good.

I have awesome friends so I feel very lucky to have that support :) Apart from that, I'm tired so it's time to express (again :/) then get some sleep.

The jaundice lights have been on and off over the last 2 days, at the moment they are on..

Umm, I think that's it! Oh, he has a head scan tomorrow. Just a routine one, there is no indication of brain bleeding for now..





delta p 19